Charlie Shomers

Hillsborough

On July 14, Charlie went for an MRI to possibly diagnose migraines. He had had a couple of isolated headaches that had woken him up and made him sick. Nothing overly concerning but out of character and needed to be checked. While at that appointment the technician noticed a mass concerning enough to reach out to the doctors immediately. Charlie's parents had to speak with their pediatrician over the phone from the office, were told there was a mass on Charlie’s brain and that they were being rushed from the radiology office via ambulance to the Children’s ER. Read More.

Aubrie Rowland

Raritan

In November 2020, Aubrie was diagnosed with a rare type of Mitochondrial Disease at the age of 2.5 years old. Her type of disease (AARS2 ovarioleukodystrophy) is a rare potentially terminal brain disease, but also can affect other parts of her body. Read More.

Logan Feeney

Bridgewater

In December of 2023, Logan had intermittent arm/shoulder pain for five years. Dozens of doctors appts showed nothing until an MRI revealed a large intramedullary spinal tumor. He underwent surgery and is now in treatment. Read More.

Ray Fantel

South Brunswick

March 30, 2009, at the age of 4 months, Ray received a tentative diagnosis of Spinal Muscular Atrophy Type 1. Read More.

Ricardo Williams

Somerset

Ricardo was diagnosed at the end of April with multiple myeloma. He was not feeling well for over a week or so, and finally went to the emergency room and found out the protein levels in his blood were high. Many doctors appointments followed and then the diagnosis. Read More.

Adeline & Ed Eick

Hillsborough

In March of 2021, our family received devastating news. Our daughter Adeline was diagnosed with a very rare genetic syndrome known as Constitutional Mismatch Repair Deficiency (CMMRD) just a few months shy of her third birthday.

In September of 2023, our family received the news that Ed (Adeline’s Dad) also has a brain lesion.

Read More.

Gavin Ruffer

Hillsborough

On January 31st, 2018, Gavin saw a neurologist who would give his family the results that would change their lives forever. At just 16 months old Gavin was diagnosed with MECP2 Duplication Syndrome. Read More.

Jackcell Medal

Manville

Jackcell, born deaf, was preparing for his senior year when on his birthday he was suddenly became very swollen. His family took him to the ER thinking he was having some sort of allergic reaction. He was diagnosed with Lupus and suffering from kidney failure. Read More.

Ben Falcone

Martinsville

Ben has two conditions that are unrelated but together have caused Ben to have life-threatening symptoms (Tracheal and Laryngeal Malaysia & Mediterranean Fever Syndrome) Read More.

Tyler Nye

Bridgewater

In September 2017 Tyler’s parents put a 5 year old neuro typical child to bed, when he woke he was a 1.5 year old no longer neuro typical. Tyler was diagnosed with Landau-kleffner-syndrome. Read More.